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This website is only one part of the Local Offer; we also have a directory which you can visit at 1space.eastsussex.gov.uk/localoffer

Medical Conditions

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Please note, we are in the process of adding more content to this page.

Overview

There is sometimes an overlap between children and young people having Special Educational Needs and Disabilities (SEND), and related medical conditions.

This page aims to highlight advice and support related to medical support in East Sussex. This is via signposting and related documents.

We aim to provide as much information as possible. There may be some conditions that aren't covered in thorough detail. The NHS website has pages that list all conditions. These pages provide information and advice on how to get extra support:

Bladder and Bowel

Constipation, soiling and daytime and night time wetting are quite common during the first few years of a child's life. However, there may be ways to improve these issues.

The NHS East Sussex Children website outlines information, advice and support that cover all of these topics.

Bladder & Bowel UK offers advice and information on all bladder and bowel issues. This includes all children and young people and those with additional needs.

Find out more by visiting their website:

The NHS provide a service that aims to promote healthy bladder and bowels amongst children and young people. It aims to ensure every opportunity is taken to support a child to achieve their continence potentials. This will result in greater independence and dignity. You can find out more by visiting the NHS website:

Diabetes

Diabetes is a condition that causes a person's blood sugar level to become too high.

There are 2 main types of diabetes:

The NHS East Sussex Children site provides more information:

Diabetes UK

Diabetes UK focuses on:

They have a website that offers support and information:

DigiBete

DigiBete is a video platform and app. It aims to help children, young people and families to manage Type 1 Diabetes:

JDRF (Juvenile Diabetes Research Foundation)

JDRF offer support and information for Type 1 Diabetes:

Immunisations

Immunisation is a way of protecting people against serious diseases. Once we've been immunised, our bodies are better able to fight diseases if we come into contact with them.

The NHS East Sussex Children site provides more information:

Sleep

Issues with sleep can be quite common with children. Sometimes families will be able to manage these issues, and in time some problems may improve. However, sometimes sleep issues can worsen if they are not checked.

Examples of common sleep issues includes:

Less common sleeping disorders can include:

Sleep problems are more common for children with Special Educational Needs and Disabilities (SEND).

There are several local and national services that aim to help with these issues. We will outline some of these, below.

The NHS can offer support if your child has difficulty sleeping.

You can find out more by visiting the NHS East Sussex Children website:

There are Family Hubs throughout East Sussex. These hubs allow for parents to share concerns and advice on lots of topics, including sleep. You can find out more by visiting the Family Hubs website:

The main NHS website provides lots of information on how to support children and young people with sleep:

For further information and support in regard to sleep, you can also visit:

Tracheostomy

A tracheostomy is an opening created at the front of the neck. This is so a tube can be inserted into the windpipe (trachea) to help you breathe.

If necessary, a tube can connect to an oxygen supply and a breathing machine called a ventilator.

The tube can also remove any fluid that's built up in the throat and windpipe.

There is a Local Offer by NHS Sussex, for children and young people who have tracheostomies. The service provides:

The support is for education settings who will be supporting children with tracheostomies. It is also for those on their caseload. This is either via universal services, or where this is not available, separately commissioned services.

The service provides for:

NHS have created two PDF documents that outline the support they offer:

Additional Help and Support

Amaze SENDIASS

Amaze SENDIASS (Special Educational Needs and Disabilities Information Advice and Support Service) are a local charity. They offer free, independent, and impartial advice for all matters relating to SEND. Contact Amaze SENDIASS by:

Visit the Amaze SENDIASS web page.

East Sussex Local Offer directory of services

You can visit our SEND-specific online directory, hosted on East Sussex 1Space. The directory lists many different services both throughout the county and online. Services cover many topics, including:

Visit the East Sussex Local Offer directory.

NHS - Health A to Z

The East Sussex Local Offer aims to provide as much information as possible. There may be some conditions that aren't covered in thorough detail. The NHS website has pages that list all conditions. These pages provide information and advice on how to get extra support:

Visit the NHS Health A to Z web page.

Glossary of East Sussex SEND Terms

We explain some of the terms used on this website on our page, Glossary of East Sussex SEND Terms.

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